Privacy and security

5. Service User information

My personal data – what is it?

Your personal data is information that identifies you; such as your date of birth or your address or reveals something about you; for example your diagnosis or how long you have been caring for someone with dementia.

How does Alzheimer's Society use my personal data?

The people who are involved in delivering services to you will need to know some information about you so that we can be sure they are delivering the service safely and appropriately

We use your personal data to:

  • help you decide which services  are suitable for you
  • help us to work with you to provide the services you receive
  • make sure the services you receive are safe and effective
  • work effectively with others who also provide you with care and support.

Who has access to my personal data?

Other people within the Society may also need to use some of your personal data to:

  • check the quality of our services;
  • help with planning new services;
  • help investigate any worries or complaints you have about our services

When we need to share information about you with other agencies providing care and support to you, we will agree this with you. We will not share your personal data, unless:

  • you ask us to;
  • we ask and you give us permission;
  • we have good reason to believe that not sharing the information would put you or someone else at risk.

We do not share your personal data for fundraising or marketing activity, either inside the Society or with other organisations.

Is my personal data confidential?

Personal data is kept confidential and is not disclosed either inside or outside
Alzheimer's Society without your agreement or a good reason.

One such reason might be to assist the emergency services if someone is severely unwell or in danger.

Another such reason might be to assist the police in preventing or detecting a crime.

Is my personal data kept securely?

Alzheimer's Society has a secure Computerised Records System which can only be accessed by authorised people in the Society.

Some services are not yet using our Computerised Records System and will use either a paper-based records system, a system of documents within the Society’s internal computer network or a combination of both to record your personal data. All personal data is held securely within these systems.

We will keep your personal data for 8 years after you stop using our services so that the information can be used for any follow-up activity that may be needed.

Can I access my personal data?

You have the right to see or obtain copies of your personal data from Alzheimer's Society. You may wish to ask us to update or correct certain details.

If you wish to make an enquiry about your personal data, please write to us at:

Information Governance Manager
Alzheimer's Society
43-44 Crutched Friars

Or send an email to: