Dementia Talking Point, our online community, can help people with less common types of dementia to feel less isolated.
If you’re diagnosed with one of the less common causes of dementia, it may be harder to find people who understand the specifics of what you’re going through.
If they’re mostly affected by Alzheimer’s, vascular dementia or both – even if they can relate to many aspects of your experiences – you might also want to connect with people who know what it’s like to live with your particular condition.
Our online community, Dementia Talking Point, is all about helping you to connect with people who are experiencing similar things, so you can be there for each other.
Online, you’re more likely to meet someone else who’s affected by Niemann-Pick disease type C, HIV-related cognitive impairment, corticobasal degeneration or another rarer dementia than you are by chance through a local group or network.
Even if there isn’t already someone on Dementia Talking Point with your specific diagnosis, they might join after seeing that you’ve posted about it. In the meantime, people with a different dementia diagnosis may identify with what it’s like to have a rarer one.
Other community members could also point to other useful ways to get support, and they might still share your experiences of more unusual symptoms and situations. Either way, Dementia Talking Point is full of people pulling together to create a supportive place for all.
The community has a dedicated area for people who have a diagnosis. Here, you can talk about the day-to-day realities of managing your condition, share good and bad days, and feel understood.
There’s also a place to talk privately about the more difficult challenges you face. For the days when you don’t feel like talking about dementia, there’s another area to simply talk about things you enjoy.
There are plenty of people on the community who you can turn to. Other members on Dementia Talking Point will be understanding, answer questions and share their own experiences. You don’t have to feel alone in what you’re going through.