Caring at the end

Getting the support that you need

Caring for someone with dementia as they near the end of their life can be a difficult, exhausting and emotionally draining rollercoaster for everyone involved.

'Knowing that there is support around the clock on Talking Point, every step of the way, can help you to focus on what is really important.'

Having so much to deal with – practically and emotionally – can feel isolating. You may want to ask questions about things as they come up, or you might simply want to talk to someone who isn’t a family member or friend.

Immediate support

On Talking Point, our online community, people who are going through a similar situation are usually able to respond straight away. People who have recently cared for someone at the end of life will often be able to share their own experiences and advice.

Some of the common issues that members have been able to help each other with include eating and drinking problems, communicating with healthcare professionals, meeting the person’s needs to the best of your ability, and how to deal with your own emotions.

Valuable memory

Apart from being challenging, caring for someone at this time might also be rewarding, allowing you to feel a sense of real closeness with them. Many former carers have said that, although too painful to see at the time, being there has left them with valuable memories as time goes by.

Knowing that there is support around the clock on Talking Point, every step of the way, can help you to focus on what is really important.

Never alone

There are forums on Talking Point for people dealing with every stage of dementia and on a variety of topics. There is also a dedicated forum for people dealing with the death of a loved one.

You don’t need to feel like you are going through anything alone, as there will always be other people who understand on our online community.

Next steps

• Join our online community Talking Point.