Online support can help to deal with a sudden realisation that someone's dementia has progressed.

It may be difficult to know how to deal with a sudden realisation that someone's dementia is progressing further, but online support from others who understand can be invaluable.

Alarm Bells LWD

If you support someone with dementia, a daily routine can be helpful and a source of comfort, particularly as the condition progresses. However, it can also make it harder to cope with a change in a person's needs that becomes apparent in a sudden or surprising way.

Crisis points

'Crisis points' or 'alarm bell' moments can relate to an obvious development, such as when the person with dementia has an accident or rapidly becomes unwell due to a urinary tract infection.

However, change can also take place more gradually. If you're around someone a lot, you may only notice a difference when a specific problem arises, and it could then feel out of the blue.

Carers and family members can be unsure how to tell other people about these changes – including health and social care professionals – especially if they are difficult to describe.

This could result in feelings of frustration or isolation, and a lack of certainty about who to turn to.

Sharing with others

There are forums on Talking Point, our online community, for people who are dealing with all stages of dementia. They can deal with general issues or specific subjects, and there's a members' only area for difficult or sensitive topics.

Talking Point members have discussed how to cope with a change in sleep patterns, or new habits like hiding money or food around the house. Others have shared tips about reassuring someone who has started to experience hallucinations.

It can be a relief for other people to confirm that they have experienced the same thing and to get ideas about what to do next.

Quick response

People can receive responses quickly on Talking Point, since the community is available 24/7 and can be accessed by anyone with an internet connection, whether they are using a computer, tablet or smartphone.

Speaking to others who are in similar situations, Talking Point members can ask questions, suggest things that might be helpful and share their own experiences with people who understand how they are feeling.

Dementia together magazine: Dec 16/Jan 17

Dementia together magazine is for everyone in the dementia movement and anyone affected by the condition.
Subscribe now
Dementia together magazine is for everyone in the dementia movement and anyone affected by the condition.
Subscribe now


Add your own

Can anyone recommend a ID bracelet and/or a tracking device.
I am worried about my uncle getting lost and not remembering where he is..

We do have help cards that people carry which can provide a contact number to call if people become aware that someone is lost or confused. These can be sent out from the Helpline 0300 222 1122. Medicalert sell ID bracelets: 01908 951045
Unforgettable has a rage of locating devices, from GPS insoles to simpler, cheaper pocket GPS trackers:

If your uncle carries a smartphone, you can use the Find My Friends app.

However, most of these rely on him remembering his wallet or a certain jacket containing the device, and also someone checking the battery life. The Herbert Protocol is being used in many police stations too, with relatives providing a photo, address and contact phone number so that people can be relocated back home more easily if they come to the attention of the police.

Leave a comment

Your email address will not be published. Required fields are marked with *

The content of this field is kept private and will not be shown publicly.