Wales Conference 2021

Find out more about the Alzheimer's Society Cymru Conference which took place on 17-18 March and to reply the sessions from the day.

Alzheimer's Society Cymru conference, 17-18 March 2021 - virtual event

Read this page in Welsh

Impact and Reach – Influencing Change

Alzheimer’s Society Cymru held a virtual conference on 17-18 March 2021. The theme of conference was Impact and Reach – Influencing Change, for Wales to become a dementia friendly nation, we need to reach everyone affected by dementia whoever they are and wherever they live. Those attending learnt from the experience of those affected by dementia, shared good practice, and heard about solutions to some of the questions we face. 

As part of the conference we will also awarded a diversity award for exemplary dementia-friendly service to under-represented groups or diverse communities during the pandemic, the winners were Sofia Vougioukalou (Individual award) and Care and Repair (Organisation award).  

You can watch the sessions back on the Replay the sessions tab.

Thank you to the Welsh Government for providing the funding for the conference.

Welsh Gov Logo 2

 

Workshops

There will be a choice of workshops you can attend including;

Dementia and learning disabilities

What are the barriers preventing individuals with learning disabilities affected by dementia from living well? Looking at existing good practice – how can we develop appropriate and accessible services and support that breaks down those barriers?

Dementia and rural communities

In 2017, Alzheimer’s Society Cymru published a report “Dementia in Rural Wales: The Lived Experiences”. This workshop will allow for discussions around the issues contained in this report, such as transport, accessing information and support, digital inclusion and increasing knowledge and awareness of dementia. The workshop will also enable participants to submit ideas on how these issues could be solved.

Dementia and LGBTQ+ community

While everyone’s experience of dementia is unique, there can be many challenges that are specific to a person’s sexual orientation or gender identity.  LGBTQ+ people with dementia who have faced discrimination or stigma may feel forced back in to the closet, or their dementia could mean they are still living in those times.  Services can sometimes fail to meet their needs and people can feel alienated or unable to participate in society.

When we consider how LGBTQ+ people with dementia can be supported to live the lives they wish, we should avoid making assumptions about their needs and experiences, and remember first and foremost that they are individuals. This workshop will look at addressing these challenges in more detail.

Dementia and BAME communities

This session will focus on best Practice and creating culturally appropriate and effective Dementia Services/Support for individuals affected by dementia within the BAME Community.

Agenda for 17 March

  • 12:15 – Login to platform

  • 12:45 – Welcome and introduction

    • Sue Phelps MBE, Country Director – Wales

    • Jim Ibell, living with dementia

  • 13:00 – Keynote speech

    • Rt Hon. Mark Drakeford MS, First Minister of Wales

  • 13:15 – Break

  • 13:30 – Panel discussion, Dementia and the Welsh Language

    • Dr Catrin Hedd Jones, Lecturer in Dementia Studies.

    • Glenda Roberts, living with dementia

    • Karen and Robert Beattie, Robert is living with Dementia, and Karen is his Wife

    • Ceri-Lynne Higgins, Alzheimer’s Society Volunteer 

    • Emyr Williams, Community Psychiatric Nurse and former Carer

    • Douglas Hughes, living with dementia

  • 14:00 – Break

  • 14:15 – Breakout Session 1 - Dementia and learning disabilities 

    • Helen Cunliffe - Locality Clinical Lead Speech and Language Therapist, Mental Health and Learning Disability Services Unit, Neath and Port Talbot, Swansea Bay University Health Board

    • Joanna Davies, Community Learning Disability Nurse, Neath and Port Talbot Community Health Team

    • Rachel Harris, Communication Development Officer, Neath and Port Talbot Community Health Team

    • Julian Hallett – Services Development Manager, Down’s Syndrome Association 

  • 14:15 – Breakout Session 2 - Dementia and rural communities 

    • Huw Owen, Policy Officer, Alzheimer’s Society

    • Richie Maiorano, Dementia Friendly Communities Officer, Alzheimer’s Society

    • Gill Windle, BSc; MSc; PhD; CPsychol Professor of Ageing and Dementia Research; Director: DSDC Wales Research Centre; Associate Director of CADR, School of Health Sciences, Bangor University

  • 14:15 – Breakout Session 3 - Dementia and LGBTQ+ community

    • Sue Phelps MBE, Country Director – Wales

    • Andy Woodhead, Living with Dementia

    • Chris Maddocks, Living with Dementia 

  • 14:15 – Breakout Session 4 - Dementia and BAME communities 

    • Suzanne Duval BEM, BME Mental Health Manager, Diverse Cymru

    • Mohammed Rauf, Founder & Director of Meri Yaadain CiC

    • David Truswell Executive Director, Dementia Alliance for Culture and Ethnicity (www.demace.com)

    • Jazz Browne, Chief Executive, Nubian Life Resource Centre Limited

  • 15:15 – Break

  • 15:30 – Dementia Friendly Diversity Awards 2021 (Wales) launch

    • Dr Andy Woodhead, Person with dementia

    • Sue Phelps MBE, Country Director – Wales

  • 15:45 – End of Conference

 

Agenda for 18 March

  • 09:30 – Login to platform

  • 10:00 – Welcome and introduction

    • Sue Phelps MBE, Country Director – Wales

    • Jim Ibell, living with dementia

  • 10:15 – Keynote speech

    • Rt Hon. Liz Saville Roberts MP

  • 10:30– Break

  • 10:45 – Panel discussion, Adapting Dementia Services & Support for the BSL and Deaf community

    • Carolyn Denmark, Carer for her late mother and stepfather

    • Maggie Hampton, Carer and Alzheimer's Society Volunteer

    • George Rook, Living with dementia, Co-Chair of LEAP, the Lived Experience Advisory Panel, Dementia UK Co-Chair of the Shropshire and Telford Health Economy Steering Group

    • Sara Mackay - Dementia Friendly Community Coordinator, Under Represented Groups, Alzheimer's Society

  • 11:15 – Break

  • 11:30 – Breakout Session 1 - Dementia and learning disabilities 

    • Helen Cunliffe - Locality Clinical Lead Speech and Language Therapist, Mental Health and Learning Disability Services Unit, Neath and Port Talbot, Swansea Bay University Health Boar

    • Joanna Davies, Community Learning Disability Nurse, Neath and Port Talbot Community Health Team

    • Rachel Harris, Communication Development Officer, Neath and Port Talbot Community Health Team

    • Pauline Young – Chair, All Wales Forum of Carers and Parents of People with learning disabilities 

  • 11:30 – Breakout Session 2 - Dementia and rural communities 

    • Huw Owen, Policy Officer, Alzheimer’s Society

    • Richie Maiorano, Dementia Friendly Communities Officer, Alzheimer’s Society

  • 11:30 – Breakout Session 3 - Dementia and LGBTQ+ community

    • Sue Phelps MBE, Country Director – Wales

    • Andy Woodhead, Living with Dementia

    • Chris Maddocks, Living with Dementia 

  • 11:30 – Breakout Session 4 - Dementia and BAME communities 

    • Mohammed Rauf, Founder & Director of Meri Yaadain CiC

    • David Truswell, Executive Director, Dementia Alliance for Culture and Ethnicity (www.demace.com)

    • Jazz Browne, Chief Executive, Nubian Life Resource Centre Limited

    • Mark Johnson Emeritus Professor of Diversity in Health and Social Care, De Montfort University Leicester

    • Dr Sofia Vougioukalou, Research Fellow in Arts and Health at Y Lab, Public Services Innovation Lab at Cardiff University

  • 12:30 – Break

  • 12:45 – Alzheimer's Society Diversity Award ceremony and summary of the conference

    • Sue Phelps MBE, Country Director – Wales

  • 13:00 – End of Conference

Rewatch the sessions

1. Rt Hon. Mark Drakeford MS, First Minister of Wales - Watch this session here

2. Dementia and the Welsh Language (translated to English) - Watch this session here

3. Dementia and the Welsh Language (in Welsh)  - Watch this session here

4. Dementia Friendly Diversity Award Launch - Watch this session here

5. Welcome from Liz Saville Roberts - Watch this session here

6. Best Practice in Adapting Dementia Services - Watch this session here

7. Dementia Friendly Diversity Award Ceremony - Watch this session here

Any questions about the conference please email [email protected] 

CP

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