Sarah Hargreaves family photo

Sarah's story: 'I slowly realised I was losing my best friend'

My name is Sarah and I’m 21 years old. In August 2017, my dad died from Alzheimer's disease. I would like to share my story of being a young carer and experiencing what it is to care for someone living with Alzheimer's disease.

Growing up, my dad was a very active. There were 60 years between us but this did not stop him from being involved in every aspect of my life.

He used to take my brother and I on numerous camping holidays, we’d ride our bikes together and we’d have many adventures.

He would always be planning new projects, DIY home improvements and could put his hand to absolutely anything.

Dad's diagnosis

Dad was diagnosed with Alzheimer's in 2011 when I was just 14 years old. At this point, my knowledge of Alzheimer's disease was very limited.

As time passed and his condition got worse, I slowly realised I was losing my best friend and what that really meant for my life.

Nothing can prepare you for that. Becoming a young carer places new expectations on you; the family dynamic is turned on its head and it leaves you trying to figure it all out whilst still trying to carry on doing what a regular teenager does.

Dementia is often described as the long goodbye and throughout those years I experienced grief and loss.

I found my interactions with Dad changed so drastically that I grieved for the relationship we used to have.

My advice to anyone experiencing this is to try and accept every new challenge and every new stage of their illness as a new chapter.

My love for my dad was unconditional and no matter what this disease did to him, he deserved all the dignity and respect I could give to him.

Caring for Dad

Dad was cared for at home until 2015 by my mum and I.

During this time we shared caring tasks and were very fortunate that we could work as a team to keep him at home for so long.

Throughout this time I learnt that Alzheimer's can affect every part of a person, from their ability to write, to communicate, they may become confused by time or not know who they are.

Being a young carer meant not only carrying out tasks to physically care for Dad, but it was also about being there for him emotionally, being able to be that friendly face even if he couldn’t remember my name.

Although Dad became very unwell, he never stopped being my dad, he never stopped being a husband, a granddad or an uncle.

There were many times where this was evident to me but this is an example I’d like to share.

In early 2015, Dad was been admitted to an organic condition hospital for an assessment of his Alzheimer's as it was not manageable in a care home.

During this time I used to get the bus from school and go visit him. This one particular time, I was so tired and told him that I’d had such a long day at school.

Even though he couldn’t look after himself or string a coherent sentence together, he made his bed and tucked me up so I could rest and sat there cuddling me.

Feelings of gratitude

It would be impossible to describe exactly what it was like to care for Dad. The struggles, the tears, the ups and downs.

To see this man, who was always so capable, be debilitated by such a condition honestly broke my heart.

But what I can say is that I am so grateful that I was given the opportunity to give back and care for him like he used to do for me until he became ill.

I’m sharing my story not to say that my experience was all doom and gloom, because every cloud does have a silver lining.

Through Dad's illness, I was inspired to study mental health nursing and I’m now in my third year of the course.

What I would like you to take from my story is the importance of having patience with someone with dementia.

It came very apparent to me that as soon as Dad's condition became prominent, people started treating him differently.

Try and support that person to be able to do things that they enjoy. Little things like involving them in what you do without worrying if they’re not doing it the way you want them to.

Dance with them and show them joy! It's so important for that person's mental health that they feel valued.

I can’t imagine how frightening it must have been for my dad and to this day I admire his bravery and courage throughout his illness.

Sarah Hargreaves with her dad
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31 comments

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Very moving.Thank you.

Beautiful words from a loving daughter

Thank you for sharing
My dad also had Dementia & passed away 2 years ago.
I treasure every minute we spent 2gether.
There were tears & laughter though most of all Love & Respect.

Lovely words Sarah.
I miss the hour and hour I would spend on the phone with Dad, he was always there when ever you needed him. Sending you big hugs xxxxx

Lovely article Sarah. It's such a wicked disease. so glad you were able to give him such loving care. Good luck in your studies and all the very best for the future

Such a moving story I know how you feel I lost my mum to this horrible disease 4 and a half years ago I know the struggle you’re going through.

Heartbreaking! What a lovely Dad you had!

Your dad will be so proud of you doing nursing. I'm a service user and help train student nurses. #yourDadRocks #nursesRock you are inspirational. Xxx

Thank you so much for this Sarah, it moved me to tears. My sisters and I are going through this journey with our mother and your words have really helped.

I am just starting this journey,and it is nice to know the feelings I have about loosing your best friend are experienced by others,sometimes I sit and can’t believe this is happening,so thank you to all who share their stories

What an amazing inspirational story! My Dad too has Alzheimer's and it's so tough losing the one you love most in the world - thank you for your truth and honesty wishing all the best for the future xxx

How do I tell my story. I get so much from reading these, mainly positive in the worst situation . I would love to share my Lovely Dads story .

Hello Joanna, thanks for getting in touch.
We're so pleased you benefit from these heartwarming articles.
If you would like to write a blog post, we're always looking for real stories to share on our blog: https://www.alzheimers.org.uk/blog/share-your-dementia-story-our-blog
If you don't want to write a post yourself, you can also share your story with us, and get involved in our press and campaigning work: https://www.alzheimers.org.uk/get-involved/share-your-story

This has made me feel very sad...I realise I am becoming so bitter with my dad's illness that I cannot even bear to be in the same room as him. All he wants to do is pick fights with me and mentally I cannot cope. But reading this makes me realise there is so much I do miss about him

Hi Soodesh.
We're so sorry to hear you're going through such a tough time at the moment. Please know that our National Dementia Helpline advisers are here for you. They can provide information and advice to help you through the most difficult parts of your dad's condition. Please call 0300 222 11 22. Here's more information about the Helpline, including opening hours: https://www.alzheimers.org.uk/get-support/national-dementia-helpline
Wishing you all the very best, Soodesh.

Thank you Sarah for sharing your story, you truly are a very strong & brave young lady. My mum has alzeheimers & its truly awful for my mum. All the best Sarah for the future xx

Sarah
This story story of yours is so moving.It really moved me to tears.I also didn't know you lost your dad all this while.
Plz do get in touch.This is Grace from Ghana.

This is so beautifully written.Sarah l am so proud of you.

We had to place my dad into care he has rapid dementia it broke my heart but I couldn’t do the medical care he needed
My mum has just been diagnosed with dementia too
So She lives in my home and we have put a lot in place and making the most of what we can I hate dementia

My mother had Alzhiemers she died over 20 years ago it was very sad at the end of life she did not know me or any of her Grand Children I miss her very much even after over 20 years when she passed away

I went through this very same thing with my Dad. What you said is “spot on” - the courage it takes to face this disease is immense. You are right, have patience and enjoy the beautiful moments. Wonderful story you have shared.

Such a heart warming account that inspires others.
I’m sure you will go on to become a great asset as a qualified Mental Health Nurse!

Your story is remarkable for someone so young to take on board but respect for your dad and yourself makes the statement , my dad had spinal problems and was bed ridden for years and emphysema was a problem latter years the thief stole him from me but like yourself I helped mum nurse dad at home to his dying day he peacefully passed and I’m most grateful that we were able to do this I work in the care sector and for all that’s done for needs and legal issues for Alzheimer’s/ Dementia suffers it’s still so very sad how some people in the care sector treats those suffering this conditions breaks me .

Lovely story, very moving

I am now into my third year of looking after my wife who has early onset Alzheimer's.
I have great support from my family but it is still very hard carering for her 24/7 and still trying to be positive.

Wow what an inspiration you are. It's hard for anyone to care for a relative but to do this at such a young age is simply amazing. You deserve the up most respect.
You've given me lots of things to think about and take with me. Thank you for sharing.

What an inspiring story, sadly my dad has gone from this cruel illness and it was a very long good bye, I am running my second maratho to try to raise money for this worthy cause , I miss him so much and just wish I could have the man before the illness back again, his decline was rapid and I didn’t realise how quickly he would deteriorate and wish I had just told him what a wonderful man he was while I still had time.

Thank you so much for sharing your inspirational story. What a wonderful daughter to a devoted Father. 'Dance with them, show them joy'- incredibly significant words that we must try to bear in mind through the very difficult times. You are one of life's truly beautiful beings. The very best of luck with your studies. Those in your care will be blessed.

Amazing story I've had it for 6 months my family it hit hard

These moving accounts by those who have gone through the long slow loss of a parent ( often) or partner, are very valuable to me now, having recently been diagnosed with Alzheimers: It makes me very conscious that the concern of my (our!) children comes from the love we share for one another, And of the increasing loss of their own full independent lives my condition will inevitably mean for a period of their lives. They are and have been the greatest loves of my life. I am grateful to have been made so aware of this through these and other recent valuable gatherings with Alzheimers Australia.

Lovely words. Thank you for sharing.
My daughter was 12 years old when her dad was diagnosed.
We did share care for her dad. He was a great dad and husband.
Always in our thoughts.

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