Man in a care home

‘I want to go home’ - What to say to someone with dementia in care

Here are some ways family members and primary carers can approach the difficult question, 'What do I say to someone with dementia in residential care who wants to go home?'

It's not uncommon for a person with dementia to say they want to go home. This may be caused by time-shifting or general confusion, and can be distressing for everyone. 

Below are a few considerations on what to say to someone in this situation who wants to go home. 

5 things to remember when someone with dementia is asking to go home

1. Avoid arguing about whether they are already ‘home'

For a person with dementia, the term 'home' may describe something more than the place they currently live. Often when a person with dementia asks to go home it refers to the sense of ’home’ rather than home itself. 
 
‘Home’ may represent memories of a time or place that was comfortable and secure and where they felt relaxed and happier. It could also be an indefinable place that may not physically exist.  
 
It’s usually best not to try to reason or disagree with the person about where their home is.

If they don't recognise their environment as 'home' at that moment, then for that moment, it isn't home.

Try to understand and acknowledge the feelings behind the wish to go home. Find out where 'home' is for them - it might not be the last place they lived. It could be where they lived before moving recently or it could be somewhere from their distant past. 

Often people with dementia describe 'home' as a pleasant, peaceful or idyllic place where they were happy. They could be encouraged to talk about why they were happy there. This can give an idea as to what they might need to feel better.

2. Reassure them of their safety

The desire to go home is probably the same desire anyone would have if we found ourselves in an unfamiliar place. 

Reassure the person verbally, and possibly with arm touches or handholding if this feels appropriate. Let the person know that they are safe. 

It may help to provide reassurance that the person is still cared about. They may be living somewhere different from where they lived before, and need to know they’re cared for.

3. Try diverting the conversation

Keep a photograph album handy. This could be a physical book or photos on a tablet or smartphone.  Sometimes looking at pictures from the past and being given the chance to reminisce will ease the person’s feelings of anxiety. 

It might be best to avoid asking questions about the pictures or the past, instead trying to make comments: 'That looks like Uncle Fred. Granny told me about the time he....' 

Alternatively, you could try shifting the person's focus from home to something else - such as food, music, or other activities, such as going for a walk. 

4. Establish whether or not they are feeling unhappy or lonely

A person with dementia may want to 'go home' because of feelings of anxiety, insecurity, depression or fear.

Our dementia advisers are here for you.

Think about whether the person with dementia is happy or unhappy when they mention going home. If they are unhappy, it may be possible to discover why. If they cannot tell you why, perhaps a member of the staff or another resident knows why. 

Like anyone, someone with dementia may act out of character to the people closest to them as a result of a bad mood or bad day. 

Does the person with dementia keep talking about going home when people are not visiting them in the care home? Does he or she seem to have settled otherwise? Ask the staff in the home as they may know.

5. Keep a log of when they are asking to go home

Certain times of the day might be worse than others. What seems to be the common denominator about these times? Is it near meal times (and would a snack perhaps help)? Is it during times when the environment is noisier than usual? Is it later in the day and possibly due to ‘sundowning’?

If you see a pattern, you can take steps to lessen or avoid some of the triggers.

This article was first published in 2018 and most recently updated in January 2024.

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People with dementia experience changes in how they perceive things. This includes misperceptions and misidentifications, hallucinations, delusions and time-shifting

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604 comments

My Wife of 54 suffered from Altziemers, twice she asked to go home ,once when we were driving home from a Vacation, she was sad and said she wanted to go home , and see her Mother , it was very sad ,and we were on the freeway. Her Mother had passed years ago , so I said we were driving home ,and she relaxed .Another time we were home and she said she wanted to go home , All I could think to do was comforting her and said we can go home ,but how about if I get you at favorite snack,and then we can watch Casablanca, which was one of her favorite movies ,and she nodded and smiled , and I was so thankful ,after 6 years of fighting Altziemers my sweetheart passed at 72 ,and I was with her holding her and telling her everything would be ok ,that was all I could ask ,to be holding her as she passed away .....

Hi Daniel

We're very sorry to hear about your wife. Thank you for sharing your memories with us. Please know we're here for you if you need to talk.

If you are based in the UK, you can speak to one of our trained dementia advisors by calling our Dementia Connect support line on 0333 150 3456. (More information on opening times: https://www.alzheimers.org.uk/dementia-connect-support-line)

If you're based in the US, please contact the Alzheimer's Association helpline: https://alz.org/help-support/resources/helpline

Or if you're based in Canada, please contact the Alzheimer's Society of Canada helpline: https://alzheimer.ca/en/Home/ContactUs

You may also like to join our online community, Talking Point. Here, carers and other people affected by dementia share their experiences, and offer advice and support to others going through similar situations. You can browse the conversations within the community or sign up for free: https://forum.alzheimers.org.uk

We hope this helps.

Alzheimer's Society blog team

 

This is such a sweet, short story and encouraging for other caregivers who need help coping and getting through the difficulties of taking care of someone with Alzheimers/Dementia
My husband of 40 yrs is in his 4th year. This past week he started believing I’m his Mother who lived in OH but has passed many years ago. He has packed a suitcase and has called me (his wife) to get flight info on coming home. It is very upsetting to hear him long to come home and tell me how much he misses being with me especially when I am sitting right next to him. What do I say or do to keep him from becoming distressed, agitated or depressed because he can’t really come home?
My mom is showing signs of dementia. Some days she's good other days I'm not sure how to describe it. She keeps asking for my father who's been deceased 12 years. First time I stated. you remember he passed away and he's no longer in pain. It came up again, I told him she's gone home to Glory. She says she knows that she gets really mad at me. And then she turns around and asked me why is he not home, is he on travel, I've been chatting with him, he's at work, Etc there's a disconnect between her knowing he's deceased and expecting him to come home. Also she's been at her house now for 6 years and now she keeps saying she's needs to go back home. She said she drove to this place and she can't remember how to get back home. She hasn't driven in two and a half years. I have both car keys and the key in the car doesn't run. I've been staying with her two nights a week and things change a little bit but not much. I ran through all the homes that we've lived in and none of them seem to be the right one. Again she gets so frustrated with me. Any suggestions? This is scary for me because I don't want to get her frustrated.

Hi Charlita,

We are sorry to hear about the situation with your mom. It sounds like a difficult position to be in.

If your mom doesn't already have a diagnosis of dementia, then encouraging her to see a GP would be a good idea. You may find this page on our website helpful: https://www.alzheimers.org.uk/about-dementia/symptoms-and-diagnosis/dementia-diagnosis/talking-gp

Once a person has a diagnosis, they will be able to access a wider range of support.

If you're based in the UK, we'd recommend speaking with a dementia adviser through our support line. If you call 03331503456, they will listen to your mom’s situation and provide you with specific advice and support.

More details about the support line (including opening hours over the Christmas period) are available here: https://www.alzheimers.org.uk/dementia-connect-support-line

We hope this helps for now, Charlita.

Alzheimer’s Society blog team

Hello I don’t know how to tell my mum that I am going on holiday without her getting upset. She lives with us and has carers attending her, I am her main carer Thank you

Hi Heike, thank you for your comment.

You may find it helpful to talk to one of our Dementia Advisers, who can learn more about your mum's situation and provide relevant advice and support. To do this, just call our Dementia Connect support line on 0333 150 3456. You can find more details and opening hours here: https://www.alzheimers.org.uk/dementia-connect-support-line.

We hope this is helpful.

Alzheimer's Society blog team

My mum lives at home by herself she can’t walk at all but keep asking to go home I’ve done the hugging telling her we all love her and asks about where home is it helps for a few hours and then where back where we started
My Mum, who suffers from dementia and bi-polar, is in a Nursing Home. Some days she is coherent whilst other days she is not. Most of the time she is calm and settled, although sometimes she does ask my Dad to take her home. The family want to bring her back to her home for Christmas Lunch, taking her back to the Nursing Home later that day. Whilst I believe it would be lovely for all of the family to be together, my fear is that it will upset Mum and play with her emotions. I don't want this to have a detrimental effect on her mental state and I think this should be our priority. Any advice would be welcome.

Hi Lynn,

We'd recommend calling our Dementia Connect support line on 0333 150 3456, where one of our dementia advisors can give you advice and support specific to your Mum's situation. More information, including opening hours, can be found here: https://www.alzheimers.org.uk/dementia-connect-support-line

You may also benefit from talking with other people who have gone through or are going through similar experiences within our online community, Talking Point: https://forum.alzheimers.org.uk/ It's free to use, and open day or night.

We hope this is helpful.

Alzheimer's Society blog team

My advice in this situation is maybe just have dinner with her at the nursing home with all the family members that want to attend instead of taking her out even though getting her out for a while maybe beneficial for her it may also be more confusing and cause a sense of abandonment when you take her back.
Thank you Stephanie. Your comments make perfect sense and my fear is exactly as you have stated.
I'm on the same situation with my hubby.but I feel that it will not be good as they like routine so to confuse best not leave them were they are now settled .it would be upsetting to take them back to the care home for family too.why not go there and make it family for them.we have been married 60 years first time apart.i would love him home.but it's what's best for them .x
Thank you for your comment Brenda. It really is a difficult one and I think it is very important to work out what would be most stressful for the resident of the care home long term.
My Grandfather is going into a Residential Care facility on Monday and I floated the idea with him (we have had multiple ambulances called, fire brigade as there was a gas leak and carbon monoxide leak at his home), his GP, Aged Care Assessment Team and Carers have all concluded that he is no longer safe to live alone due to vulnerability, cognitive decline, safety, etc. I've had to tell him he is coming to stay with my for a few days (we live in a different state and I'm the only family relative - also his legal guardian, etc.) which isn't a lie he will be staying with me for a few days but then he is being admitted Monday. I've selected a home that is right across the highway from me, I can go and see him as often as he/I would like, I can take him out for the day, he can see his great-grandkids, etc. but he is not happy about it. When I mentioned what his doctor had said he blew up. He's forgotten now obviously but I'm concerned about how he is going to react on Monday when we get there. How do I explain it to him when he so very much believes that he is totally ok, doesn't have a diagnosis and is independent (he is not, I do his groceries and have them delivered), I have a cleaner go once a fortnight, carers go every day (2 days a week they go twice a day). I'm wondering if anyone else has had this and has any advice. I don't want to lie to him but he doesn't accept the truth and can't understand it, would trying to word it like his Doctor has said he needs to go into Respite for a week or similar work? Any advice!? I feel so anxious about how this is going to go.

Hi Leesa,

We're very sorry to hear about your grandfather, that sounds like a stressful situation to be in - moving into residential care can be a difficult time for everyone involved.

If you are based in the UK, we recommend speaking with one of our dementia advisers to discuss the situation. They will be best placed to provide you with advice and support. Please call our Dementia Connect support line on 0333 150 3456. (More information on opening times and other methods of contact: https://www.alzheimers.org.uk/get-support/dementia-connect-support-line)

If you're based in the US, please contact the Alzheimer's Association helpline: https://alz.org/help-support/resources/helpline

If you're based in Canada, please contact the Alzheimer's Society of Canada helpline: https://alzheimer.ca/en/Home/ContactUs

Or if you're based in Australia, you can contact the Dementia Australia helpline: https://www.dementia.org.au/helpline

We hope this helps for now. Wishing you all the best.

Alzheimer's Society blog team

When my mom needed to go to a facility bc of dementia, in this case AL, I told her it was for a 30-day trial to see if she would like it. While it was at the end of COVID; there were not many activities and she was not a joiner anyway... In short, there were many problems but I told her that her doctor said she couldn't live alone after that trial and she needed more help than I could give her on a daily basis. She has never understood why she can't be at my home and asks constantly why she can't. I wish I could say it will get easier once your mom is being "taken care of" but I can't. Each person is different as is each situation.
Hi Brenda, I am going through the same thing. My mom entered care in the middle of Covid so we could only visit through the window. It was difficult. I'm thankful we can go into her room now. I just keep reminding my mom that she didn't feel safe at home, and that she is safe there with a lot of great company. Even though I need to keep reminding her of that, I think it helps. She has been at the nursing home for two years now.
My mom who is 98 recently began asking to go home...we have lived together all of my life, so she IS home. I work fulltime and have an aide with her daily which she is also acting out with. My siblings live out-of-state and cannot help with daily episodes. I have given her a baby doll as I've read it helps, but now it's starting up in the am hours and I find I have less patience and she has more aggression. I don't want to overmedicate nor transfer her to assisted living .... any suggestions on how to help her sleep thru the night???

Hello Nidia,
 
It sounds like you might benefit from joining our online community, Talking Point. This is the ideal place to ask questions and share experiences with other people affected by dementia. You can browse existing topics or sign up to participate in conversations. Talking Point is free to join and open day or night: https://forum.alzheimers.org.uk
 
If you're based in the US, please get in touch with the Alzheimer's Association helpline: https://alz.org/help-support/resources/helpline 
 
Or if you're based in Canada, please get in touch with the Alzheimer's Society of Canada helpline: https://alzheimer.ca/en/Home/ContactUs 

In the meantime, we do have information on sleep and night-time disturbances, which could be useful.

You can read the information on our web pages: https://www.alzheimers.org.uk/about-dementia/symptoms-and-diagnosis/sleep-problems-treatments-dementia

Or download the PDF factsheet for free: https://www.alzheimers.org.uk/sites/default/files/2021-03/534LP%20Understanding%20sleep%20problems.pdf
 
We hope this helps for now, Nidia.

Alzheimer's Society blog team 

I suggest engaging her in more activities during the day such as a walk or doing a little exercise whatever she can handle doing. She may have sundowner syndrome causing her not to sleep very much at night which causes her to be a little Ill in the mornings. Home may also be a place that she consider to be happy in when she was younger consider asking her where she considers home to be. Also I would ask the caregiver to engage in more stimulating activities maybe coloring, painting, drawing or even putting a puzzle together with her. Hope some of this advice helps you. Caregiving is very stressful and can sometimes become frustrating also remember take time for yourself other than work whether it be 5-10 min a day or just a few min in a day. I wish you the best of luck.
My mother-in-law who is 84 years old and has short-term memory loss is in an assisted living. The staff there give her her meds. But they can come in at 8 AM and give her meds and by 830 she forgot they did. She insist they are not giving her any meds. They tried to show her the package that the med came in but she still is suspicious. Lately she’s been crying a lot and says she wants to go to a different place. we have nowhere else where she can go. She says people there, other people living there, spread rumors about her.What can we do?
My father is at home and still wants to go home, a time when I was 13 my younger sister 11 my older sister 20 the crying pleading and shaking can go on for 6 hours. There seems to be no tactic to pass these episodes except exhaustion brings short bursts of rationality. This started when my mother his wife of 60 years went in to hospital a week ago. He was loosing his sense of place before that though. I find myself dreading each new day.

Will, we're very sorry to hear this. It sounds like a very stressful situation. Please know that you aren't alone and we are here for you.

We're sorry to hear this. Please know that we are here for you if you need support.

We'd recommend calling our support line on 0333 150 3456 to speak with one of our trained dementia advisers. They will listen to you and provide specific information, advice and support that's relevant to your situation. You can find more details about the support line (including opening hours and other methods of contact) here: https://www.alzheimers.org.uk/dementia-connect-support-line

We hope this helps for now, Will. Please do call our support line if you need to.

Alzheimer's Society blog team

I was no longer able to cope with my fathers continual pleading to see his mother and be allowed to go home to his family, my heart just broke and my own emotional state was rollercoastering. I had to call 999 and have a specialist paramedics take him away. He was so keen to leave his home of over 60 years, I was stricken by grief.

Will, we're very sorry to hear about your father, that sounds like a very difficult situation to be in. Please know that we are here for you if you need support.

You can always call our support line on 0333 150 3456 to speak with one of our trained dementia advisers. They will listen to you and provide specific information, advice and support. You can find more details about the support line (including opening hours and other methods of contact) here: https://www.alzheimers.org.uk/dementia-connect-support-line

We hope this helps, Will. And please do call our support line if you need to.

Alzheimer's Society blog team

I'm sorry to hear this, Will. You are not alone.
I have recently moved back with with my mother and stepfather as he is waiting for a brain scan, the wait time is lenghty. I worked within care over covid, especially people with dementia. Now my mental health isn't the greatest after my own father passing away and myself and mother are struggling to cope with my stepfather, he can't form any conversation, he has began to wonder in the street and the police have been called a few times as he is getting on random buses and doesn't know where he is. Luckily I work from work and I am able to keep a close eye. It's a struggle.
My husband 79 years young, has dementia plus bi polar lithium levels always jumping up and down, sometimes, can't tell if it's bipolar or dementia, he won't let anyone come in to shower etc... Very bad mobility, and has incontinence. I am so tired get absolutely worn out. Life can be lonely, and some days very long. I sympathise with everyone out there, who is trying to look after their loved ones. Take care Barbara New Zealand
I am sorry for you and your husband. It cannot be easy being and older person having to try and deal and cope with these things. My mum has alzheimers but is in assisted accommodation. That said she's constantly asking to go home. :(
I found all the remarks/answers/advice very helpful and informative. Thankyou
Hi my husband is in a care home for 6 months and he recognises me and wants to be with me he wants to go home but i think he just wants me to syay with him its very distressing trying to leave him when i visit the care home says he constantly looking for me any arvice

Hi Sheila,

We're sorry to hear about your husband, it sounds like you're going through a stressful time. We'd recommend calling our support line on 0333 150 3456 to speak with one of our trained dementia advisers. They will be able to provide advice and support specific to your situation. You can find more details about the support line (including opening hours and other methods of contact) here: https://www.alzheimers.org.uk/dementia-connect-support-line

You might also benefit from joining our online community, Talking Point, where people affected by dementia can share their experiences. You can browse topics within the community or sign up for free here: https://www.alzheimers.org.uk/get-support/dementia-talking-point-our-online-community

We hope this helps for now, Sheila. Please do call our support line if you need someone to talk to.

Alzheimer's Society blog team

Hello, I am a new care giver dealing with demented patients in a facility, but I am specifically caring for one because I became good friends with her husband from a rehab facility. They don’t have kids or anyone else in the area that may visit, they just have each other. The wife wants her husband to take her home, but the husband isn’t capable of doing so because of his physique. What are some things I could tell her or do with her ? She asks’ when he’s coming and what’s her family doing consistently throughout the day. If there are any tips on how I could get her to shower that would be nice too.

Hello Chloe and thanks for getting in touch.

It sounds like you would benefit from joining our online community. Talking Point is the ideal place for carers and other people affected by dementia to share their personal experiences, and offer advice and support to others going through similar situations. You can browse the conversations within the community or sign up to participate for free: https://forum.alzheimers.org.uk

If you are based in the UK, we'd suggest speaking with one of our dementia advisers. They will listen to the situation and provide you with advice and support. Please call our Dementia Connect support line on 0333 150 3456. (More information on opening times, and other methods of contact, can be found here: https://www.alzheimers.org.uk/dementia-connect-support-line)

If you're based in the US, please contact the Alzheimer's Association helpline: https://alz.org/help-support/resources/helpline

Or if you're based in Canada, please contact the Alzheimer's Society of Canada helpline: https://alzheimer.ca/en/Home/ContactUs

In the meantime, we do have information and guidance on washing and dressing that may be useful: https://www.alzheimers.org.uk/get-support/daily-living/washing-dressing This is available as a free, downloadable factsheet: https://www.alzheimers.org.uk/sites/default/files/2019-05/504lp-washing-and-bathing-190521.pdf

Plus we have another article that may be of interest: When is it okay to lie to someone with dementia? https://www.alzheimers.org.uk/blog/lying-to-someone-with-dementia

And finally, it might help to know that the term 'demented' is an outdated word that disempowers people with dementia by making them seem passive, childlike, or worthy of pity. This blog article has some more information on what not to say to a person with dementia: https://www.alzheimers.org.uk/blog/language-dementia-what-not-to-say

We hope this is helpful for now. Please do contact our support line on 0333 150 3456 if you're UK based.

Alzheimer's Society website team