This year, we need to keep pushing forward, to make sure that the issues faced by the 850,000 people in the UK with dementia and their families cannot be ignored. Here is a look at our campaign plans in 2019.
In part one of this update we looked back on 2018, a busy year for our Fix Dementia Care campaign.
This year, with the unrelenting focus on Brexit, we will need to work even harder to keep the pressure up. People affected by dementia are spending everything they have on essential care. It will take bold reform to put an end to this unfairness.
This will be no mean feat – but with your support we have demonstrated the scale and urgency of this issue, and will continue to do so.
Campaigning to fix dementia care in 2019
Green Paper on adult social care coming soon
Unfortunately, while the Government promised that the Green Paper on adult social care would be published last year, we have not yet seen it. The Government have said to expect publication by the end of this month. It has already been too long to wait for people who are spending all their savings on a care system that does not support their needs.
We will continue to work alongside our campaigners to keep the pressure on the Government. People affected by dementia use homecare and care homes more than anyone else. We'll make sure the Government understand that it is vital that their plans consider people with dementia and their carers.
NHS Long-Term Plan published
The NHS Long-Term Plan, which was published earlier this month, outlines plans for the NHS over the next 10 years. It has created a fantastic opportunity for the Government to address the issues faced by people with dementia. We were delighted to see our growing Dementia Connect service referenced, signifying the Government’s commitment to supporting people with dementia and their families following a diagnosis.
It is essential that dementia is given the same attention and resource as the other leading causes of death within the plan. We are not yet convinced this is the case from the initial document. This is, however, something that can be addressed in the approach and implementation of the plan. We will taking action to ensure the voices of people affected by dementia are listened to and acted upon.
How can you help?
We will continue to work to ensure the voices of people affected by dementia are heard at every level of Government and beyond. But, we can’t do it without your help.
This year, in our packed political climate, it will be particularly hard to draw attention to our cause. With this in mind, we need to make sure the voices of people affected by dementia are louder than ever.
Fix Dementia Care
Join our campaign and help us create a social care system that works for the people who use it most.