Study highlights stress of caring
Published 18 August 2010
One of the most difficult times when caring for a person with dementia is the period before diagnosis according to a study published online in the British Medical Journal.
Researchers at University College London based the research on interviews with 89 carers from the Greater London area. Carers highlighted that they need help when the symptoms of dementia begin. The study found that a number of measures would make their lives easier including organising legal issues early on; involving a professional to persuade the person with dementia to accept help and emphasising that services can improve, rather than reduce, independence.
Alzheimer's Society comment:
'This study highlights just how stressful caring for a person with dementia can be. This stress is often compounded by the fact that many people with dementia struggle to get a formal diagnosis. It can be a particularly difficult time for carers as they may not be able to access the support or information they need.'
'There are estimated to be 600,000 people in the UK acting as the main carers for people with dementia. As the number of people living with the condition continues to rise we must ensure carers receive support early on, help with day-to-day caring and get the chance to have a break.'
Ruth Sutherland
Interim Chief Executive
Alzheimer's Society
Ref: Gill Livingston et at., 'Making decisions for people with dementia who lack capacity: qualitative study for family carers in UK', British Medical Journal, August 2010.
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Notes to editors:
- One in three people over 65 will die with dementia.
- Alzheimer's Society research shows that 750,000 people in the UK have a form of dementia, more than half have Alzheimer's disease. In just 15 years a million people will be living with dementia. This will soar to 1.7 million people by 2051.
- Alzheimer's Society champions the rights of people living with dementia and the millions of people who care for them.
- Alzheimer's Society works in England, Wales and Northern Ireland.
- Alzheimer's Society supports people to live well with dementia today and funds research to find a cure for tomorrow. We rely on voluntary donations to continue our vital work. You can donate now by calling 0845 306 0898 or visiting alzheimers.org.uk
- Alzheimer's Society provides a National Dementia Helpline, the number is 0845 300 0336 or visit alzheimers.org.uk
