Study highlights stress of caring

Researchers at University College London based the research on interviews with 89 carers from the Greater London area. Carers highlighted that they need help when the symptoms of dementia begin. The study found that a number of measures would make their lives easier including organising legal issues early on; involving a professional to persuade the person with dementia to accept help and emphasising that services can improve, rather than reduce, independence.

Alzheimer's Society comment:

'This study highlights just how stressful caring for a person with dementia can be. This stress is often compounded by the fact that many people with dementia struggle to get a formal diagnosis. It can be a particularly difficult time for carers as they may not be able to access the support or information they need.

'There are estimated to be 600,000 people in the UK acting as the main carers for people with dementia. As the number of people living with the condition continues to rise we must ensure carers receive support early on, help with day-to-day caring and get the chance to have a break.'

Ruth Sutherland
Interim Chief Executive
Alzheimer's Society

Ref: Gill Livingston et at., 'Making decisions for people with dementia who lack capacity: qualitative study for family carers in UK', British Medical Journal, August 2010.

Further Information

• Take a look at Talking Point, our online forum for anyone affected by dementia
• Alzheimer's Society National Dementia Helpline 0845 300 0336 can provide information, support, guidance and referrals to other appropriate organisations.