Inquiry launched to improve support for people with dementia living within minority ethnic groups

The APPG is launching a new inquiry into this topic as people from Black, Asian and Minority Ethnic (BAME) groups are under-represented in dementia care services and generally seek a diagnosis later. Current evidence in this area is limited, but it does indicate there may be lower awareness, higher levels of stigma, and different cultural understandings of dementia among people from BAME communities.

The inquiry will investigate the current problems people with dementia from BAME groups face, whilst exploring the dementia support available to them. The APPG on Dementia will make recommendations for action to ensure individuals and families from BAME communities are well supported. It will also identify and share examples of services that are providing effective and high quality support.

In this work the APPG on Dementia is seeking evidence from a range of people. This will include people with dementia and their carers, health and social care providers and practitioners, and experts in dealing with those challenges that can arise for people living in minority groups. The APPG invites commissioners and providers of dementia support services to give examples of services that have been tailored for people in minority groups

Bulent Sun's father Zahit is Turkish and was diagnosed with Alzheimer's disease in 2008. Bulent Sun said:

'My dad goes along to several dementia support groups every week. When he is there his mind is occupied and it's a brilliant therapy for him. He's much happier. Even though he doesn't speak English, he's made friends there and always comes home with a smile of his face. If there was a group that dad could go to where he could speak his own language, and maybe have a glass of his favourite drink from home, Raki, I think he would benefit even more. He could share his feelings and experiences, I think he'd feel more at home.'

Baroness Sally Greengross OBE, Chair of the APPG on Dementia, said:

'It’s vital that people with dementia from all walks of life have access to support that can help them live well with the condition. Last year, the APPG focused on improving diagnosis of dementia. Our focus now is on ensuring high quality dementia support is available to all once they’ve received a formal diagnosis.

'Making sure more services are tailored to meet the needs of people with dementia from ethnic minorities will mean they can achieve the best possible quality of life.'

Jeremy Hughes, Chief Executive of Alzheimer’s Society, said:

'With ageing populations in BAME groups across the country, dementia is a growing challenge. The limited evidence we have suggests few people get the support they need. Alzheimer’s Society exists to help all people with dementia, and is developing its work to ensure services suit the needs of people from BAME communities.  

'This inquiry will shed light on how well people with dementia in BAME communities are supported, providing an evidence base showing where improvements are needed. It’s vital that commissioners take into account the needs of people in these harder to reach communities so they get the support and information they need.'

To be kept up to date with progress of the inquiry, you can register your interest by filling in your contact details at www.alzheimers.org.uk/appginquiry