Stigma still a major barrier to people with dementia

A quarter of people with dementia also said they hid their diagnosis with the main reason being stigma.

The report, launched by Alzheimer's Disease International on World Alzheimer's Day was based on a global survey of 2,500 people with dementia and carers across more than 50 countries. It is the largest international survey of how stigma and lack of understanding affects people with dementia. Among the key recommendations were the need to educate the public, give people with dementia a voice and to involve people with dementia in their local communities.

The report comes on the same day that the Department of Health, supported by Alzheimer's Society, launches a three-month national advertising and marketing campaign to raise awareness of dementia.

Alzheimer's Society comment:

'At a time when they need more support, people with dementia are still coming up against closed doors and turned backs. While this wall of stigma might seem insurmountable, we are beginning to break it down in the UK. Across the country people and organisations are coming together to help make communities dementia friendly.

'With only 43 per cent of people with dementia in the UK having a diagnosis, it is vital we also tackle the stigma and misunderstanding that is preventing people discussing their concerns or going to their GP. Only with a diagnosis can people access vital treatments and support. That is why Alzheimer's Society is supporting the Department of Health today to launch its dementia awareness campaign.'

Jeremy Hughes
Chief Executive
Alzheimer's Society

• Read about the Department of Health campaign supported by Alzheimer's to increase early diagnosis rates