Alzheimer's Society Campaigners' Network

Media volunteer, Sheffield

Why do you campaign for Alzheimer's Society?

I decided to become involved in campaigning for Alzheimer's Society due to personal circumstances (my mother was 'officially' diagnosed with vascular dementia and Alzheimer's two years ago). When I began to ask for help from Social Services and the NHS, it soon became clear that I was dealing with a shambolic system which consisted of 'year long' waiting lists for diagnosis, inconsistent information and total lack of care or consideration for people with dementia and their carers. I was determined for my story to be heard in an attempt to ensure that others did not endure the same treatment that I had received during an extremely difficult time.

I chose to become a member of Alzheimer's Society as it was clearly the only organisation which provided me with immense support and extensive information which was current and correct. After attending only one 'Dementia Cafe', I felt included, supported and informed. I was also provided with points of contact who followed up on my questions and 'kept me in the loop'. It was also a great opportunity to meet and speak to people who were experiencing the same difficulties as myself.

What does your role involve?

Although I have only been a volunteer for only six months, I have been involved in the Dementia Community Roadshow and have taken part in interviews with the local radio and press. This was an ideal opportunity to raise awareness of the condition, its devastating affects along with the shortage of support which carers are currently provided with.

What skills and qualities does a campaigner need to have?

As a campaign volunteer, I feel that a potential volunteer should have a deep understanding of dementia and the impact it has on family members. The person should be a good communicator, assertive and willing to 'stand up' for those who cannot speak for themselves. Additionally, they should have empathy and understanding in all situations - and probably most importantly - a good listener. For anyone thinking of becoming a volunteer, I would assure them that it is a greatly satisfying role. You will be operating with the knowledge that, through campaigning, you are helping and representing thousands of people either unwilling or unable to speak up for themselves. You will be there to 'make a difference'.