Alzheimer's Society Campaigners' Network

Campaign Group Lead, Norfolk

Why do I campaign for Alzheimer's Society?

When my working life stopped at the end of 2011 there was no way I could spend every day at home, however much gardening, decorating and dog walking beckoned.  I decided to do something different from my paid work - most recently in business support and previously as a careers advisor. Alzheimer's Society fitted my criteria - a national organisation, with good training and back-up and, of course, a cause I could support wholeheartedly.  Campaigning is a win win role for me. I am helping ensure that many vital issues are addressed. At the same time I am busy, feel useful, am meeting new people and on a learning curve which is a challenge I love.  

What does my role involve?

I currently represent Alzheimer's Society on campaigns to put care right in hospitals and to enhance early diagnosis by ensuring that literature is available in places accessible to people with memory problems. I plan to get involved ensuring that care homes are of a high standard. In just five months I have attended three training days, an away day, three conferences and staffed stands in a hospital and a Tesco car park. Local office staff have assisted with recruiting a second campaigner and advised on ways to make local contacts. I spend a couple of days a week doing something for Alzheimer's Society, but volunteering is very flexible. It fits really well around my other interests. 

What skills and qualities does a campaigner need to have?

A friend's wife recently died with Alzheimer's disease so I knew a little about its progression, concerns of carers and the need for support. Campaigning uses lots of transferrable skills and qualities - organising, presenting, advising, communicating verbally and in writing, and reasonable IT skills. Great training is available to update skills. I have written a press release and my first ever (but probably first of many) letter to my MP. For volunteers from a non-health background it can be daunting at first but I have found health and care professionals keen to involve Alzheimer's Society in discussions and I am acquiring confidence and learning rapidly.