Alzheimer's Society Campaigners' Network

Campaign Group lead, Warwickshire

Why do you campaign for Alzheimer's Society?

Having cared for my wife Isobel through the whole "dementia journey", most of it 24/7, I want to pass on that experience to the thousands of others following us, to make their lives easier.  I have been an active member of this group since Oct 2010 after Isobel went into residential care, having been approached nine months earlier by a lady from Alzheimer's Society. She suggested I would make a good volunteer after I gave a presentation on my experiences as a carer.  This seemed an ideal opportunity to fill some of the void created when the caring role finished.

What does your role involve?

To me it is like going back to work part time, but striking the right balance with the rest of my life.  I am involved with annual campaigns like Dementia Awareness Week, helping on the Dementia Roadshow, radio interviews, attending conferences and Parliamentary Delegations, including regular contact with my MP.  I also give talks to social groups, and help at a dementia café once a month.  Our group is now engaged in possibly our biggest challenge undertaking a pilot project aimed at improving early diagnosis rates.

What skills and qualities does a campaigner need to have?

Perhaps I have been fortunate that most of my working life was being a team member, and ultimately being in charge.  I can reuse those skills I acquired then as a volunteer. As with any team, all members have different talents, and the trick is to use those talents to full advantage.  Any prospective volunteer would be most welcome, as there can never be enough of us.  We are encouraged to expand our range of skills; previously I had never written a press release, and dare I say, my greatest challenge has been to adapt to a female dominated environment.