We are approached by many researchers to act as partners on their research projects, this can be for patient and public involvement, staff support to advise on research, or to support the delivery, implementation or dissemination of research.
Lead researcher: Professor Martin Orrell
Institution: University of Nottingham
Research aim: The PRIDE programme aims to help people with dementia to find ways to keep control of their own lives, stay healthy, contribute to society and feel valued and valuable.
Our involvement: Alzheimer’s Society is supporting the feasibility trial of the PRIDE intervention by becoming one of the delivery partners whose staff will deliver the intervention. We currently have 9 staff members being trained in how to use and deliver the intervention. We have also facilitated the involvement of people affected by dementia from our Research Network.
- Evaluating the effectiveness and cost-effectiveness of Dementia Care Mapping (DCM) to enable the Person Centred Care Training (PCCT) for people with dementia and staff: A UK cluster randomised-controlled trial in in care homes (DCM EPIC trial)
Lead researcher: Dr Clare Surr
Institution: University of Bradford
Research aim: The project aims to evaluate the clinical and cost-effectiveness of Dementia Care Mapping in addition to usual care compared to usual care alone for people with dementia living in care homes in the UK.
Our involvement: Alzheimer’s Society is supporting patient and public involvement by engaging research network volunteers as members of the Trial Management Group and Trial Steering Committee for this project.
Lead researcher: Prof Dawn Brooker/Prof Martin Orrell
Institution: University of Worcester/ University of Nottingham
Research aim: The overall aim of the implementation study MEETINGDEM is to prepare, support and evaluate the dissemination and implementation of the successful multicomponent Meeting Centres for people with dementia and their carers in the United Kingdom.
Our involvement: Alzheimer's Society is the implementation partner for the first Meeting Centre’s in the UK, taking place in Droitwich Spa in Worcestershire and Leominster in Herefordshire. We are working with the University of Worcester, London School of Economics, University College London, and other organisations to plan, deliver and evaluate the adaptation of the Meeting Centre Support Programme in the UK.
- Supporting Excellence in end of life care in Dementia via an integrated care pathway (SEED programme)
Lead researcher: Professor Louise Robinson
Institution: Northumbria Healthcare NHS Foundation Trust
Research aim: The project aims to develop an evidence-based, integrated care pathway to support professionals to provide good quality, community-based end of life care in dementia.
Our involvement: Alzheimer’s Society is providing staff and Research Network Volunteer representation on the study Steering Group. We plan to support dissemination of outcomes at the end of the project.
Lead researcher: Professor Linda Clare
Institution: University of Bangor
Research aim: This project aims to investigate and characterise the factors that support or constrain the ability of people with dementia and family carers to live well with dementia and experience good quality of life.
Our involvement: Alzheimer’s Society has staff representation on the steering group and contributes to the scientific direction of the programme. We also coordinate a group of carers and people with dementia that support the programme. We plan to support dissemination of outcomes towards the end of the project.
Ouputs and resources: There is a project related to IDEAL called 'A Life More Ordinary'. One of the outputs of this are a series of 'Chapbooks', which are a creative, visual resource showing what life with dementia is like. The first Chapbook, "The Allotment of Time" is available to view now.
Lead researcher: Professor Gill Livingston
Institution: University College London
Research aim: The MARQUE programme aims to increase knowledge about dementia, agitation and personhood.
Our involvement: Alzheimer’s Society are providing patient and public involvement support of Research Network Volunteers in Trial Steering Committee, focus groups and consultation exercises alongside staff involvement in Advisory Group.
Lead researcher: Professor Sube Banerjee
Institution: Brighton and Sussex Medical School, University of Surrey
Research aim: Time for dementia is a programme aimed at developing, delivering and evaluating an innovative educational initiative, involving pairing medical, nursing and paramedic students with people living with dementia and their families with an overall aim to increase students understanding of the emerging challenges presented by the ageing population, multi-morbidity and long-term conditions.
Our Involvement: Alzheimer’s Society has been involved with the Time for Dementia project from the beginning, providing funding application support, assistance with recruitment of participant families, a dedicated project manager, and ongoing welfare support for participants through our local services.