1. About the All-Party Parliamentary Group on Dementia
The All-Party Parliamentary Group on Dementia (APPG) is a cross party group made up of MPs and Peers with an interest in dementia.
The APPG is run in partnership with Alzheimer's Society, which provides administrative support and expert advice to the group.
Its aim is to raise awareness of dementia among parliamentarians and to influence legislation and policy making in order to improve the lives of people with dementia and their carers. The Group meets several times a year and uses each meeting to focus on specific issues affecting people with dementia. It also conducts inquiries on issues that affect people living with dementia, and last year the focus was on dementia and co-morbidities.
Co-Chairs: Debbie Abrahams MP, Baroness Sally Greengross and Edward Argar MP
Officers: Jim Fitzpatrick MP and Alec Shelbrooke MP
You can join the distribution list and be invited to future APPG meetings by emailing firstname.lastname@example.org
2016 APPG Inquiry
Dementia Rarely Travels Alone: living with dementia and other conditions
During the All Party Parliamentary Group on Dementia’s held an inquiry on dementia and comorbidities, the findings and recommendations from this were collated in the report - Dementia Rarely Travels Alone: living with dementia and other conditions.
This inquiry brought to light the scale of difficulty faced by people living with dementia and other health conditions. Despite significant progress to deliver integrated care services and support, the health and social system frequently treats conditions in isolation so that people with dementia and other health conditions receive disjointed, substandard care and treatment. Key findings from the report include:
- 7 in 10 people living with dementia are also living with another medical condition. The severity of someone’s dementia can have consequences on their ability to manage their other conditions
- The current health and care system is fragmented and does not have the capacity to manage the complexity of these multiple conditions. Conditions are often treated in isolation from one another which can lead to disjointed care and confusion with medication management. It can also result in avoidable hospital admissions
- The Care Quality Commission (CQC) inspects individual providers rather than care pathways
- One of the biggest challenges facing society today is building a health and social care system that can provide holistic, person-centred care for people living with multiple conditions
- Without radical change, the current health and care system will consign thousands of people to substandard care and a poor quality of life, wasting millions of pounds in the process
The report identifies the changes needed across the healthcare system so that the NHS can meet the challenge of caring for people living with dementia and other conditions, supporting them to live fulfilled lives. The key recommendations are outlined below:
- Public Health England should mandate a dementia component in the NHS Health Check for people aged 40 to 65 years old to enable people of all ages to take action to reduce their risk of dementia.
- The Quality Outcomes Framework should be revised by the relevant bodies to ensure people with dementia and comorbidities receive a minimum of one GP-led holistic review of their care and support per year.
- The Royal Pharmaceutical Society should develop new guidelines on polypharmacy for England that address how to treat people with dementia living with multiple long-term conditions.
- Public Health England should include data on dementia and common comorbidities in the Dementia Intelligence Network to provide health and social care commissioners with the data to commission integrated care pathways.
- CQC inspection regimes should assess the quality of care pathways across health and social care settings alongside the performance of individual providers